Baby Anya's Story

Welcome

Welcome
Thank you for visiting Anya's website.  As many of  you know, Anya has been through an awful lot since the day she was born.  She has had countless procedures and tests, two surgeries and has suffered brief respiratory and cardiac arrest requiring chest compressions and intubation. Although it is still uncertain, it is believed Anya may have
Mitochondrial disease or perhaps some other metabolic disorder.  We are trying desperately to get a diagnosis and doing what we can to help her through this.  Fortunately, she's a fighter... 

We developed this site not only to help keep friends and family informed on the latest news but more importantly to help get Anya's story out, hoping someone who has experienced a similar situation may be able to help.  We also hope Anya's story may help other families find answers to their child's issues.  We have been amazed with and thankful for the number of responses we've received so far from the caring community of other families in our situation.    

Thank you,

Pete & Katie

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